Tuesday, April 17, 2012

A Long Time...

A few months have passed since I have posted in this blog and it only seems appropriate to follow up with my last entry.
In my last blog I asked for you to "Come Pray With Us" for dear sweet Quinn Rosalie Seymour.  At the time in December she was in the middle of a courageous battle with EB (Epidermolysis Bullosa).  She had traveled to Minnesota with her family and had a bone marrow transplant.  This is the only treatment available for the type of EB that Quinn was fighting.  Quinn was the youngest to have ever had this procedure done.  THIS IS WHY IT IMPORTANT TO GET ON THE MATCH BONE MARROW DONOR REGISTRY.
She fought it with a smile.  Quinn fought with a positive courageous spirit that was contagious and uplifting.    On April 7th, 2012 Quinn passed away.  She is dancing in The Kingdom of Heaven  In her short life she did so many things.  She taught life lessons in love, in spirit, and in faith.  Quinn showed us all that no matter how tough things are a smile and a positive spirit can lift you and those surrounding you.  Quinn did so much to help the cause of a cure for EB.  Her battle , her journey will someday save someone because it holds answers to the cure.  Her life here on Earth was too short.  She is so very much missed. 
I want to share one of the lessons Quinn taught me.  I wish so much that she was here, I wish that I could read her updates.  The updates that I would anxiously wait for because being so far away  was so hard as I was so used to getting updates so quickly and it was so hard not being on her team in Minnesota as I was here waiting in Akron.  I wanted to pray and pray the right way...the best way for Quinn.  I wanted others to hear Quinn's story and pray with us. Quinn's miracle ...I wanted for God to hear my prayers...I needed God to give Quinn that miracle.  I found myself wondering more and more about miracles. 
What is a miracle:


<><> <><>
Noun:<><> <><>
  1. A surprising and welcome event that is not explicable by natural or scientific laws and is considered to be divine.
  2. A highly improbable or extraordinary event, development, or accomplishment.
                              QUINN IS THE MIRACLE!
       Quinn's Journey, Quinn's Fight, Quinn's Journey to HEAVEN ..Quinn is The Miracle!

Please spread awareness of this rare genetic disease..EB ( Epidermolysis Bullosa ).  Please take at look at the links below and like my previous post.  "Be a Light So Others Can See" 

♥ Quinn you are loved, and missed and I will continue to fight this disease because YOU taught me to!  THANK YOU Quinn for the gifts you have given to me.  THANK YOU Mandy and Marc for sharing Quinn ,Your Miracle, with all of us~ with the world.  God THANK YOU for the Miracle~THANK YOU for Quinn~